Category: Scholarship

Jade Golden – Essay Contest

• Nancy Meredith
• Scholarship

Essay by Jade Golden

All of my life, my mother had always been exceptionally healthy – almost unusually so. She was in great shape, she ate well, and she was busy, much too busy to even have the sniffles. However, one evening while we were having dinner, my mom casually mentioned that she had been feeling winded while climbing up and down the stairs. She attributed her shortness of breath to a nagging “chest cold” she had been suffering from for the past month. It was an odd thing for her to complain about anything, so I suggested she see a doctor.

At first, her health providers thought she had pneumonia. Her symptoms were vague and easily attributable to common and mostly benign respiratory conditions. She didn’t have a remarkable past medical history or occupational history that would cause suspicion or draw any red flags. In spite of this, further workup and a lung biopsy revealed the insidious cause of her breathing difficulty.

Stage IV mesothelioma. I vividly remember my brother coming into my room to tell me her diagnosis. My mom’s physician had just called about the biopsy results. At the time, I didn’t know what mesothelioma was. Confused and worried, I searched online for any information I could find. The one thing that stood out amongst the blur of panic was “poor prognosis” and disease mortality charts indicating my mom would have only a few months to live.

Despite a prognosis that would have crushed those with less of a will to survive, my mom charged forth with a tenacity and positivity that astounded me. For the next four years, she fought hard, going through round after round of life zapping chemotherapy as well as invasive surgeries. Although she did enjoy some happy years of remission, her cancer eventually returned and progressed rapidly. During this time, we spent endless hours in hospitals, consulting professionals, searching for solutions to a problem that we could not fix.

Words cannot accurately describe the helplessness I felt in watching my mom suffer. How could someone who had been so independent, vivacious, and vibrant all her life suddenly become this frail shell of the person she once was? She had lost the ability to complete even the simplest of tasks and was unable to walk unassisted. Her abdomen was like a giant watermelon, hard and swollen from ascites. Her legs were edematous and trunk like. Even her once soft, flawless olive skin was ashen, tented and fit loosely on her bones. I did what I could to make her feel her best – I dressed her, bathed her, put her makeup on, prepared her meals. However, her health continued to decline. On a warm afternoon in late June, my mom passed away.

My mom’s battle with mesothelioma truly gave me an appreciation for the sanctity of human life and encouraged me to seek ways where I could help other people in a medical setting. Because of her, I chose to go to graduate school to become a physician assistant, because I knew I could make a positive impact on the lives of others. I hope to use my education to help patients with cancer and give them the resources they need to head into battle with the positivity and determination to beat this devastating disease. Treating cancer is not just a physical battle. It is a mental and emotional one, too. I don’t want any one of my patients to feel alone or alienated by the challenges they face. I want to ensure that they have strong support system – family, friends, a support group, myself – ready to listen to their fears, share their concerns, and cheer them on.

To this day, we are unsure when or where my mom was exposed to asbestos – this is why raising awareness for mesothelioma and educating the public about the dangers of asbestos is crucial. Asbestos exposure is the primary carcinogen linked to the development of mesothelioma. Asbestos has been used in a wide array of products including insulation, car brakes, paints, adhesives, and ceiling tiles to name a few (“Asbestos”). When asbestos-containing products are damaged, asbestos fibers can be released into the air. If a person inhales these fibers, the fibers can get caught in the lungs causing damage to lung tissue, which potentiates the risk of developing cancers, like mesothelioma (“Asbestos”). Although the most commonly affected organ system is the lungs, asbestos can also become trapped in the abdomen or pericardium, which is the lining around the heart (“Mesothelioma Cancer”). Groups recognized as high risk for asbestos exposure include individuals who have worked in industries such as shipbuilding, textiles, construction, and asbestos mining (“Asbestos”); however, this does not exclude those who have not worked in such fields. Even people who do not work in such industries should be aware of asbestos containing materials at home, school, or work and be mindful to avoid those materials.

Physicians had difficulty diagnosing my mom with mesothelioma because she did not fit the typical demographic of most mesothelioma patients. It can take up to 10-40 years before symptoms of asbestos exposure occur (“Asbestos”), so identification of exposure is often difficult unless the patient has had significant occupational history in one of the previously mentioned industries. The most common presenting symptoms in mesothelioma are shortness of breath and chest wall pain, but patients can also present with fatigue, weight loss, fever, and sweats (“Mesothelioma”). It is important that people presenting with these symptoms seek medical care, especially if they have known asbestos exposure.

To someone who has lost a loved one to mesothelioma, I would say don’t ask the “what ifs”. I have often asked myself, “What if I knew then what I know now about mesothelioma? What if I had told her to see a doctor sooner? What if I could’ve changed what happened?” The “what ifs” do not change what has happened. It took me a long time to realize that. Now, I focus on the happy moments. I think about my mom dancing at my brother’s wedding. I think about her laugh and her smile. Mesothelioma took so much, but it has not taken away all the loving memories I have of my mom that keep her spirit alive.

References:

• “Asbestos Exposure and Cancer Risk.” National Cancer Institute. N.p., n.d. Web. 17 Feb. 2017.
• “Mesothelioma Cancer.” Mesothelioma.com Resources for Patients and Their Families. N.p., n.d. Web. 20 Mar. 2017.
• “Mesothelioma.” Practice Essentials, Background, Etiology. N.p., 08 Jan. 2017. Web. 23 Mar. 2017.

About

Jade Golden

I am currently studying at MCPHS University to become a physician assistant. My mom was diagnosed with mesothelioma when I was a senior in high school and passed away shortly after I graduated college. She inspired me to pursue a career in healthcare. I hope someday to share my knowledge and compassion with patients and their families who are dealing with difficult situations like the one my mom and family went through during her battle with cancer.

Heather Johnson – Mesothelioma Essay Contest

• Nancy Meredith
• Scholarship

Essay by Heather Johnson

When I was a small child and would hear that someone had cancer, I couldn’t comprehend what that meant and in my case, it was always old people. So initially I began to equate it to the elderly and death. These people that contracted cancer were also sort of mythical to me while I was growing up. I was never a direct victim back then in my early years. Oh, how I yearn for the ignorance of youth at times.

My first dance with the big C was in my early twenties. It should be described more as a “scare.” I had for the first time in my life had a pap smear that gave me abnormal results. That then lead to a biopsy and then a procedure called a LEEP. I was educated on the wonderful HPV virus and told how lucky I was that I didn’t need additional treatments, so I moved on with my life just feeling a little less invincible.

Cancer decided it would leave me and people close to me alone for a while and then suddenly it decided to change my life and the lives around me drastically. To tell the story, I need to go back to before I was even born.

Imagine spending your childhood in the 50’s and 60’s on a big farm. Having a mother that made fresh breakfast every day with the eggs from the chickens on the farm. You drank milk from what the cows produced on the farm. Everything was green and fresh. You would play outside barefoot with the barnyard kittens and your farm dog would follow you all around when he wasn’t sleeping under a tree or chasing a tractor.

Your family owned several farms in the area and hundreds and hundreds of acres, so when it was nice and you got older you and your younger sister would go on bike rides to visit and play with other relatives that lived on the other farms. Sometimes even with all that excitement you would get bored and even though your Mother would get cross at you; you would ride to the outer borders of the town that was close by and play there.

That was extremely entertaining. There was a huge factory there with a huge parking lot that after the day shift workers went home would get very empty. Lots of fun for kids and their imaginations. Back then, cops wouldn’t kick children out for trespassing because the businesses weren’t worried about the next law suit that might occur yet. So, this left for hours of entertainment. Four square games, tennis matches and different hop scotch games would take place just to name some examples. Then tired and tuckered out, everyone would return home to get the sweat off their bodies, maybe evening chores, or dinnertime.

Everything seemed so simple and pure back then. No one was worried about the billows of white, gray, and black smoke that came out of the factory. They didn’t worry about how they disposed their waste and the fact that this factory bordered a creek and the Kreider’s Dairy Farms. It brought jobs and industry to a small town in Lancaster. It was Manheim’s Raymark Asbesto’s plant.

The factory opened in 1906 bringing more than 500 jobs to the small country town. It was mostly shut down by the 1980’s and totally closed by 1998. Asbestos has been linked to cancer and mesothelioma. Mesothelioma is sometimes even called the “asbestos cancer.” It affects the thin lining that encases our organs. Of course, only people that worked at the factory would be at risk for this type of cancer. Wrong!

My mother-in-law, Patricia Kreider Johnson was that child mentioned above. Living and growing up in that pure country life. She grew up with fresh food straight from the farm and had no lack of exercise. Who knew that just living a little over a mile from the asbestos plant would have such a horrendous effect on her life 50 years later.

In 2011, my husband and I were driving when we got a call from Brian’s (my husband’s) grandmother. The typical grandmother checking up on her grandson conversation.   During this conversation, she asked him if he talked to his mother. He responded, “No, why.” She then told him that his mom, who was a hospice nurse, hasn’t been at work for three days. She had been ill and not sure what was making her sick. At this point, they suspected a bad case of the flu.

A week later, still no answers. Now we were all very worried and concerned. Bloodwork was coming back normal. How could this be? The woman was so fatigued she could barely lift her head. She was sleeping two-thirds of the day. This was not normal for anyone who knew her. To say she was active is an understatement. She could be a whirlwind.

Two more weeks later, she finally had her diagnosis. Stage 4 mesothelioma with approximately 6months to a year life sentence. We were in shock. Incurable. We were in denial. The family opted to try to extend her life with no avail. The treatments just made her weak. They made her even more immunocompromised so she couldn’t be around the grandchildren. She slept all the time and had so much pain. Pat passed away almost 9 months after her diagnosis.

At the same time my grandmother, who also had cancer but of a different kind also passed away. This was my first real time with any loss and not only did I have to grieve my Nana but also my mother-in-law. How was I supposed to be there for my husband and children as they lost their mother and grandmother? Those weeks and months are a blur.

It was about six months later, November 2013 I enrolled in my first class to take that spring semester with the goal of a nursing degree. My Nana always would say to me “you should have been a nurse” when I was taking care of her and I could honor my mother-in-law at the same time. I will never be able to fill Pat’s shoes. She was an incredible nurse.

I have one more year left. In the beginning, I was taking classes part-time and working full-time, but I started to get so eager about fulfilling my dream that I enrolled at PA College of Health Sciences for the fall of 2016 full-time. My daughter and I are freshman simultaneously at a different school. I also have three amazing boys and am trying to pay for the rest of school by only taking out the federal loans. This has been difficult, going from a two-income household to one income. My husband has been super supportive. I thank God for him every day.

Finally, this is what cancer did to me. It took away two amazing people in my life in a short period of time, but it let me say goodbye. It taught me that each day is a gift and to respect time and make the most out of it. It taught me that every chance you get to see or talk to someone you love, you express it and never say goodbye to them without “I love you” attached. It taught me to look at life differently and I can’t quite explain that but I just know I do; I look at it so much differently now.

About

Heather Johnson

I’m a wife and mom of 4 wonderful children and currently working on my RN. My oldest is also in college. I love to live life to the fullest. My favorite saying that I learned from my Dad is “Living the Dream” when anyone asks how I am doing. When I talk with people about mesothelioma, it amazes me, in my area especially, how many people have not heard of it.