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Category: Faces of Mesothelioma

Mesothelioma Warrior _ Advocate Lou Williams

The Magic of the Holidays is Carried on in the Next Generation

This time of year can be quite trying for someone who has lost a loved one to mesothelioma. From Thanksgiving to the New Year, it is a time when family and friends get together to celebrate the beauty and love of the holidays. At times, there are treasured stories retold of those we mourn; then, there are the times when we feel an emptiness as we gaze at the chair that used to be occupied by someone we cared for deeply.

For me personally, that time of grief really begins in October at the anniversary of my Dad’s passing. It is a time when I look back fondly on all of our memories, but then I realize quickly that the first weeks without him were largely over the most festive times of the year. We went through the motions that first year, trying our best to carry on our same customs like we know Dad would have wanted. It was difficult, but we somehow muddled through. Now, we have had some time to “adjust” and still try to keep things as traditional as possible.

Last year, with the addition of my daughter, things changed again; this time, for the better. She brings so much joy and light to the lives of my family and friends, that it’s not hard to realize that she takes after her grandfather. My Dad was always the one who brought everyone together; now, it seems as though the torch has been passed on to her. Seeing her makes me feel as though Dad is still with me in a very real way, making Christmastime magical all over again.

Mesothelioma Patients Need Time and Listening Ear

Finding Comfort in Dad’s Music

A lot of people find much comfort in music. It has a healing quality to it, and you can usually find a song to fit any mood. Here are some lyrics that help me when I need to remember my Dad.

My Dad sang the song I’ll Fly Away often with his band, and it was also sung at his funeral:

“Some glad morning when this life is o’er, I’ll fly away.

To that home on God’s celestial shore, I’ll fly away.”

Dad called Rocky Top his “theme song”:

“Now all I know is it’s a pity life can’t be simple again.”

He was a fan of The Eagles. I remember him working in the basement at home and the song Take it Easy always seemed to be playing:

“Take it easy, take it easy. Don’t let the sound of your own wheels drive you crazy.

 Lighten up while you still can, don’t even try to understand.

Just find a place to make your stand, and take it easy.”

Lastly, our song was You are My Sunshine:

“You are my sunshine, my only sunshine.

You make me happy when skies are gray.

You’ll never know, dear, how much I love you.

Please don’t take my sunshine away.”

What are some songs that remind you of your loved ones?  I’d love to hear about them!

Gaining Comfort Knowing Dad is Mesothelioma-Free in Heaven

As I write this, it is the eve of the second anniversary of my Dad’s passing. This is always an extremely challenging time of year for me. I think back to all the “lasts”- the last time I saw Dad, the last conversation, his last day, his last night. I tend to dwell on these times. I then flip-flop to the “firsts”- our first full day without him, our first Christmas without his special family gift showing up, the first birthday where he wasn’t here. Those are hard as well.

I should think of all of his “firsts” though. What were his first moments in Heaven like? Who was the first person he saw? What was the first thing he did? He would have, without a doubt, been in awe (and probably still is) of everything that God has there for him.

For us here, death is a finality, but for Dad, it was a new beginning. While I stay here grieving, he is happy. He got a new body, free of mesothelioma and any pain. Knowing this, I try to recognize that he is in a beautiful place now with no sadness or grief; however, my heartbreak continues.

I often think that if I could just see him or hear his voice things would be so much easier. If I could just have five more minutes with him, maybe I could have some more peace with the situation. Maybe, but then again, I believe that everything happened just as God intended. And even though I can’t see or hear him, I feel like he is watching over me and my family every day.

Even with the pain of losing my Dad, life has continued with many blessings: my daughter who will be turning one year old soon, the health of my family, the list could go on and on. I talk to Dad all the time and ask him to pray for us, and I truly believe that he hears me. He watched out for me for my whole life, why wouldn’t he do the same from Heaven?

Although I will always miss Dad and everything about him, I try to focus on all of the gifts that God has given me. It is hard to recognize them at times, especially right now, but I know that He is taking care of Dad, and that is the greatest blessing anyone could ever want.

Dad, I miss you and love you today and always, and you will forever have a special place in my heart.

A Fall Festival to Raise Funds for the Meso Foundation

On September 26, Mesothelioma Awareness Day, my family and I held a fundraising booth at our hometown festival in Dunbar, PA. Everyone helped in some way either by donating an item, setting up, working the event, or all of the above! We are so grateful for the generosity of our family, friends, and community who helped to make this event a success.

The weather was beautiful, the company warm, and the patrons ready to purchase tickets for baskets, t-shirts, and the “Mystery Prize!” Many people greeted us with stories about Dad and condolences about our great loss. We heard from people who had worked with my father or just knew him from seeing him around town.

A fundraiser to benefit the Mesothelioma Applied Research Foundation was a wonderful way to honor the memory of my father, help others, and to reconnect with friends who care deeply for my family.

Dad loved doing fundraisers before he lost his battle to this terrible disease, and we are proud to carry on the tradition, just as he would have liked. The light from his smile is missing, but the strength of his heart remains.

Remembering The Last Goodbye

My heart breaks as I write today, realizing that it has been two years to the day since the last time I saw my Dad. I remember it very clearly; he was in the hospital that day, supposed to be discharged. We had big plans to order pizza that night to celebrate, and then Mike and I needed to head home. While being evaluated that afternoon, his oxygen kept dropping, prompting the medical staff to cancel his discharge.

I could see the disappointment in Dad’s eyes that day; he wanted so badly to be home in his rocking chair with his dog beside him. Those 19 days he ended up spending in the hospital took a toll on him and he was tired. We made the best of that evening though, ordering out for dinner… well for Mom, my husband, and me. I kept sneaking him some French fries; just another one of our private memories that no one knew about.

When I left the hospital that night, we said goodbye and I started out the door of his room. I happened to turn around and he waved and said, “Bye Jen!” I remember thinking that was so strange; he usually called me anything other than my name (he had a long list of nicknames for me). I blew him a kiss and left the hospital, not realizing that that would be the last time I would see my Dad smile. The last time I would hug him. The last time we would look each other in the eyes and say, “I love you.”

When I stop to think about it, maybe the oddity of him calling me by my name was a gift. Maybe God gave that to me so that I would always remember it and the smile he had on his face when I last saw him. The warmth that Dad exuded was extra present in that moment, as was the love in his eyes.

I miss my Dad every day, but it’s on days like today that it really hits me. Realizing that I’ve had to live without him for almost two years is tough to handle, but I know that he is up in Heaven now, with that same love for me and my family, smiling on us each and every moment.

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